Oh… don’t worry! I don’t feel a thing. It’s like the feet, attached to my legs, aren’t really mine… it’s like, they belong to someone else.
So if I stub my toe, get a blister, or walk on a piece of broken glass, or something sharp, I imagine some poor bloke (or woman) somewhere in the world, howling, “Owwww!” And not having a clue as to why s/he is in pain and possibly bleeding!
I truly hope this is not happening, but cannot understand, for the life of me, where my sense of “feeling” physical pain (at least in my feet) as gone?
The long-awaited trip, to the Neurologist, which took place on August 21, resulted in a very thorough two-hour consultation. The Consultant’s letter, outlining that appointment and her findings, was received by me yesterday.
At first reading, the four page letter was rather unremarkable.
- PMR/GCA, blah, blah, blah…
- In March.. tingling in feet, blah, blah, blah…
- Numbness, pins & needles, electrical shock feeling, blah, blah, blah…
- Both brothers developed neuropathy… (Hmmm?)
- No other family history of the condition, blah, blah, blah…
- Reflexes all present, but reduced; apart from absent left bicep jerk…
- Hint of bilateral hip flexion weakness, blah, blah, bah…
Okay get to the good stuff!
- Ooooooo, “patchy hyperaesthesia to pin prick in the feet and shins…”
- “Cold sensation reduced from below the knee down into feet, bilaterally…”
- “Vibration sense lost below ankles.”
So basically, I’m “DEAD” from the knees down! Well… at least there’s nothing really important down there, I guess.
Glass looking half full! Cool.
The Consultant’s “impression” is that I possibly have “…small fibre neuropathy, with possible “autonomic involvement.”
Ummmm, wait a minute?
What does “autonomic involvement” mean? Ahhh, “The autonomic nervous system is a control system that acts largely unconsciously and regulates bodily functions such as the heart rate, digestion, respiratory rate, urination/bowel control, and sexual arousal.”
Glass now looking, less than half full.
Shit, and yes, I mean that perhaps quite literally!
Next steps? Await an appoinment for an MRI, wait for all blood work to come back, wait longer for Bence-Jones protien and TTR Genetics tests to come back. Meet with head consultant Dr Basil Ridha on November 5th and potentally be referred to the National Hospital for Neurology and Neurosurgery, in London.
Oh… and of course worry.
Hmmmmm? Where did I put that number for Dignitas